Moving In

We have decided to change our updating to blogging, this is much more fun and a lot easier. We had a very long day and a long night last night. We called the neurologist and expressed our concerns about Kaitlyn's breathing and the medicine she was on. They said to lower the does significantly and that that should help with her breathing. Well what the doctor didn't realize (they never do) is that Kaitlyn would go through withdraw if we lower it from 2ML to 0.3ml. So we had to call back that night and let him know that this was not working. Kaitlyn cried for about 6 hours straight before he told us to give her 1ml of Ativan. Sadly this still did not work, Kaitlyn was still breathing very fast and was still crying. The neurologist really didn't know what to do at that point and suggested us to her cardiologist. We called him and he doesn't think that the medicine can cause the fast breathing, he can't say that for sure but doesn't think so. He said just monitor her for right now and see how she does and give us a call back in the morning. Well Kaitlyn finally fell asleep around 12:30- 1:00 last night. I have called the cardiologist and her pediatrician this morning to try and figure out what they want to do. We have expressed how we feel about the neurology dept. here at Children's and how we feel that they are not giving Kaitlyn a full 100% and how we would like to change neurologist, but its a working progress. Right now all were hoping is that it doesn't have to do with her heart (fast breathing) and that it is just a matter of sorting out her medicines.